Search

Beckton parents need £100,000 to treat seriously ill daughter’s brain tumour

PUBLISHED: 07:00 15 August 2017 | UPDATED: 13:40 15 August 2017

Three-year-old Maham Usman. Picture: Tooba Usman and Usman Azam

Three-year-old Maham Usman. Picture: Tooba Usman and Usman Azam

Tooba Usman and Usman Azam

A Beckton couple trying to save the life of their seriously-ill toddler are appealing for help to raise money for specialist treatment in Europe.

Tooba Usman, 28 and husband Usman Azam, 27, made an urgent fundraising appeal for daughter Maham to receive proton beam therapy–an advanced form of radiotherapy currently unavailable on the NHS.

They need to raise £100,000 for private treatment, and are desperately searching for clinics in Germany and Switzerland.

“I’m so, so stressed. My mind isn’t working really,” mum Tooba told the Recorder, adding: “All the time I’m just sitting on the computer, emailing and talking to the doctors.”

The pair, who live in Bellflower Close and also have a two-year-old daughter, Sarah, first approached a facility in Prague for help. They sent doctors Maham’s scans but were told the clinic was full.

“They [the clinic] just cancelled everything at the last minute,” said Tooba. “They just said: ‘Oh, we’ve just found out that we haven’t got space at the hospital’.”

Maham was first diagnosed with medulloblastoma, a cancerous brain tumour affecting children, in January 2015.

She had yet to blow out her first birthday candles when she underwent eight months of chemotherapy and multiple brain surgeries at Great Ormond Street Hospital.

The treatment left Maham with speaking and hearing problems. She cannot walk and is fed through “a tube in her tummy,” said Tooba.

Last month, Maham, now aged three, had another operation after doctors said her tumour had regrown.

They recommended radiotherapy to stop the cancer spreading, though Maham’s parents worry about its possible side-effects.

While Maham’s consultant oncologist, Dr Yen-Ching Chang, told the parents proton beam therapy “would offer the same chance of cure as photon therapy” - a more conventional procedure using X-rays - and “may offer an advantage” in reducing the chance of side effects and secondary cancers.

Proton beam therapy shoots cancerous cells with high-energy protons, rather than X-rays. Advocates say its precision beam and minimal damage to surrounding tissue make it particularly good for treating complex cancers.

Manchester’s Christie hospital will be the first NHS unit to offer the therapy, but not until August 2018.

To donate, visit https://www.gofundme.com/mahams-cancer-treatment-fund

Related articles

Latest Newham Stories

A piece from our recent Kick-Off pullout, where 19-year-old Josh Koroma discusses the influence of the Orient manager

Michael Clark

The roof of a shop with flats above has collapsed.

London Fire Brigade

A work experience programme set up by a Newham University Hospital doctor has seen students receive offers to study medicine at Oxford and Cambridge.

Newham University Hospital

The experienced coach reflected on the difference between the squad O’s had last season compared to now

Josh Koroma

The son of Kosovan refugees whose family fled the Balkan battlefields will find out on tomorrow if he has got the A-Level results to get into the country’s best university

11:46

This is the moment a shocking mass brawl spilled onto a platform at Plaistow underground station.

British Transport Police

A Canning Town charity is one of six winners of a community funding grant.

Forest Gate
07:00

A group of mums has called on the mayor to spare their youngsters’ blushes by keeping a park’s loos open longer.

Newham Council

PROMOTED CONTENT

Hanson Fernandes’ journey began in 2015 when he arrived in London from Goa, India.

Newsletter Sign Up

Newham Recorder twice-weekly newsletter
Sign up to receive our regular email newsletter

Our Privacy Policy

Most read news

Show Job Lists

Digital Edition

cover

Enjoy the
Newham Recorder
e-edition today

Subscribe

Education and Training

cover

Read the
Education and Training
e-edition today

Read Now